For over 30 years, the Center for Autism and Developmental Disorders has been involved in a wide range of research for children and adults with developmental disabilities and comorbid psychiatric disorders. Research is supported through grants from the Federal Government, foundations, and pharmaceutical industry sponsors, CADD researchers have studied the efficacy of both psychosocial treatments and pharmacological interventions to address disorders such as ADHD, anxiety, and conduct problems. Currently, the Center is involved in two multicenter studies examining the efficacy of pharmacological treatments for ADHD symptoms in children with autism and for children with Down syndrome. The Center’s research faculty also serve as leaders in a longstanding international effort (funded by the National Institute of Child Health and Human Development and the National Institute on Aging) to examine Alzheimer’s Disease biomarkers in adults with Down syndrome.  The Alzheimer Biomarker Consortium – Down Syndrome (ABC-DS) involves following a cohort of 550 adults with Down syndrome over time and includes associated studies examining the impact of lifestyle factors on symptoms of dementia as well as parental factors that might impact dementia risk. A related multicenter study examining comorbid medical conditions in both children and adults with Down syndrome is anticipated to begin in late 2024.

We are hiring a full-time Research Associate to support studies that focus on research for individuals with developmental disabilities including Down syndrome and Autism. The RA will be responsible for patient electronic medical record chart reviews, study recruitment via telephone and/or face-to-face contact with potential study participants, data entry in various data entry platforms, and assisting the study coordinators and principal investigators in other duties as required.

This position is grant funded.

Responsibilities:

Data entry, via manual and electronic data capture and scoring. EMR chart reviews. Participant recruitment including assisting in informed consent process. Maintain accurate study documentation. Follow up and reminder phone calls to study participants. Administration of study measures including questionnaires and additional scoring. Accompany study participants and their families to imaging and laboratory procedures. Tracking study visits and follow ups. Contact and interact with physicians and clinicians regarding potential study participants.